registry SUBCOMMITTEe
The Registry Subcommittee oversees the design, implementation, management, and sustainability of the AAN’s Axon Registry®, including engaging members in participation, coordinating and guiding education associated with Axon Registry, and ensuring the quality of Axon Registry data. The Registry Subcommittee reports to the Quality Committee.
Chair: Sarah M. Benish, MD, FAAN
Vice-Chair: Andrew M. Wilson, MD, MBA
Staff Liaison: Karen Lundgren, MBA, Manager, Clinical Data Registry
Job Description
Committee Responsibilities
- Assess and respond to the clinical data registry environment, organizational priorities, and member needs.
- Collaborate with the Quality Measure Subcommittee to integrate clinical quality measures into Axon Registry.
- Support the growth of Axon Registry and ensure a high-quality user experience in Axon Registry.
- Assess and assure the quality, reliability, and validity of Axon Registry data.
- Identify, vet, and prioritize non-commercial research using Axon Registry data.
- Collaborate with appropriate external organizations, AAN committees, and AAN subcommittees.
- Continually work to improve the efficiency, output, and rigor of the AAN’s Axon Registry.
Member Responsibilities
- Contribute to the successful design, implementation, and sustainability of the registry.
- Attend two face to face meetings each year.
- Attend quarterly subcommittee calls.
- Participate in subcommittee listserv discussions and check and respond to email in a timely manner.
- Vote on subcommittee motions during meetings and via email communications.
- Serve as liaison to other committees, subcommittees, or external organizations.
- Copy AAN staff on all subcommittee-related correspondence.
Estimated Time Commitment
Five hours per month, two face-to-face meetings per year, and quarterly calls
Selection/Appointment
Subcommittee members are appointed by the AAN president elect.
Subcommittee Composition
- 17 voting members:
- Chair
- Vice Chair
- 15 at-large members
- Chair of Quality Committee (non-voting)